Beingdense.com began in my kitchen just after Christmas 2015.
A close friend and I had just finished reading an article written by the wonderful Dr Nancy Cappello who sadly passed away at the end of 2018, from complications relating to the radiotherapy she had had at her initial Breast Cancer diagnosis and treatment.
Until then I had never heard of Breast Density and I soon discovered most, if not all women in my work place and social circle hadn’t either.
We settled on the name Beingdense.com – soon after I signed up to a wordpress account and began a patient advocacy about a little known Breast Cancer risk factor, in Ireland, at that time.
The global conversation around Breast Density has stepped up a lot in just over three years and longer. I have learned a great deal, I maintain an active SoMe presence with regular updates and links to research about Breast Density. I would always advise any woman to discuss any concerns with a medical expert.
Much has been talked about in terms of what to do about Breast Density, what to tell women, should women be offered additional screening if they have Dense Breasts?
Yes – women must be told about what their Mammogram determines about their breast tissue. If a woman has Dense Breasts she must be given this information and advised about Supplemental screening, Ultrasound and or MRI.
The FDA announcement in February this year, recommending standardisation in terms of Breast Density reporting in the United States came as a very welcome one, especially for the many women who have campaigned and lobbied their legislative processes for Breast Density reporting.
Changes like this very often come as a result of concerted efforts by patients who advocate with dedication, resilience and tenacity.
We have been lucky enough to engage with many other breast density advocacies and organisations around the world.
The conversation about Breast Density in Ireland, has – I believe only just begun in earnest.
A public Seminar on Breast Density takes place, Monday June 10th @ 5.00 pm in the Royal College of Surgeons.
It would be great to see you there.
Eventbrite | Breast Density Seminar https://www.eventbrite.ie/e/breast-density-seminar-tickets-60871280639/
Being Dense 
I’d love to have this reblogged on Cancerbus.com with your permission – what a great way to raise awareness and perhaps spare one woman from presenting with de novo stage 4 like me by demanding better diagnostics we might save a life, and a whole lot of tears and pain without a doubt.
Thank you! And you know how I feel about the topic.
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Of Course Ilene
I would love you to reblog this for me. Thank you. X
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That would be great! I’ll attempt to make that happen ASAP. I’ve not done it before I need to read the virtual manual to make sure it’s done properly.
Hugs
Ilene
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How I wish I could – is there going to be a recording of it or a webcast?
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No recording but I will post comments after. Love your Poem in Marie’s round up this week. 😘
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Thank you. The poem came forth like a wellspring. I was so tired of hearing that. From other cancer patients as well. You’d think they kniwvbetter, but if they don’t I suppose how do people not yet touched in some way by cancer know at all?
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I think it’s just that Ilene, they really don’t know at all. Perhaps we didn’t either until Life After 😉
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