I just want to highlight some of the ILC Advocacy work that I’ve been involved closely with this year so far as Patient Advocate with http://www.Lobularireland.com and http://www.elbcc.org A real highlight has been our association with the recently published paper How Researchers, Clinicians and Patient Advocates Can Accelerate Lobular Breast Cancer As founder member of Lobular Ireland … More Mid Summer Up Date #LivingWithLobular
This information should be routinely reported, in the same way we are notified about our Bloods, Blood Pressure, Bone Density and many other crucial health issues.
This week a good friend asked me why I continue to engage with and tell my story. “Is it not a constant reminder of what happened, does it not bring up bad memories and feelings?” We chatted away about it for some time. I thought about it for quite some time after too. It would be … More A Vested Interest
This week I am delighted to give a heads up on a new October Breast Cancer Awareness initiative. When I was diagnosed with Breast Cancer in December 2015, I had no idea that there were many different types of the disease. I received advanced word of my Dx by phone, at work (not ideal I … More Putting A Face To Lobular Breast Cancer
Your Breast Density Matters http://www.Beingdense.com is an Irish Patient Advocacy established by Lobular Breast Cancer patient, Siobhán Freeney who lives in County Wexford on the East coast of Ireland. Improved screening methods for women with dense breasts are needed because of their increased risk of breast cancer and of failed early diagnosis by screening mammography. https://beingdense.com/2020/07/10/be-the-change-you-wish-to-see-in-the-world/ … More Women’s Health Imaging
The first time I saw the words BREAST DENSITY I was sitting in a local hairdressers. I remember it so well because that same week I had been diagnosed with Invasive Lobular Breast Cancer. It was a few days before Christmas 2015 and I was already poignantly aware of what the New Year held in … More An Entirely Different Story